Brooke April 2017

Brooke April 2017

Brooke was born happy and healthy in the Fall of 2014 with the typically expected ups and downs of an infant. Unfortunately it wasn't long until there were troubling signs related to her lack of growth. After over a year of doctor visits, invasive tests, medications and uncomfortable procedures, Brooke was diagnosed with cystinosis. Cystinosis is an extremely rare genetic disease for which there is currently no cure. There are only approximately 500 people, mostly children, with this disease in the United States. Cystinosis initially affects the kidneys and eyes and will ultimately affect all the organs of the body. Even with the right medications and attention, Brooke faces a very difficult future. The disease requires round the clock medications and monitoring. As an extremely rare "orphan" disease, funding for research is almost non-existent. Most research being conducted to help those affected by this serious disease has been funded by donations from people like you. Learn, spread the word and donate to give Hope For Brooke!