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help find a cure for an extremely cute kid with an extremely rare disease

Hope For Brooke

  • ABOUT BROOKE
  • EVENT 2025
  • CYSTINOSIS
  • DONATE
  • BROOKE'S BLOG

Oh What A Night!

March 13, 2016 Ian Pullman
The Cystinosis Foundation of New Jersey 2016 Gala

The Cystinosis Foundation of New Jersey 2016 Gala

Last night I attended my first ever black tie affair, hosted by the Cystinosis Foundation of New Jersey. Mommy, Daddy and I got all dressed up, and I got to meet the other cystinosis families in my home state. It was so much fun! 

The gala was filled with food, fun, music, and good people.  Everyone there was supporting kids and young adults like me.  The Foundation did a wonderful job planning this event, and has raised over $500,000 in their 32 years of existence!  

I had so much fun with all of my new friends, and I felt like the belle of the ball.  I showed everyone my funky dance moves, and I charmed the pants off of the guests.  I can't wait to go again next year!

Thanks so much to the Foundation for having me as their "littlest" guest!

← 2016 CRF Day of HopeOne Month Down, A Lifetime to Go (or maybe not?)... →

Prefer to make a direct donation instead of gambling on the guys’ shad fishing skills? You can visit the CRF website to make a direct donation here: https://www.cystinosisresearch.org/family-stories/brooke-emerson/#donate