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help find a cure for an extremely cute kid with an extremely rare disease

Hope For Brooke

  • ABOUT BROOKE
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  • DONATE
  • BROOKE'S BLOG

Growth Hormones

January 22, 2017 Ian Pullman
Doc McStuffins and Gabi

Doc McStuffins and Gabi

Mommy always says I have the happiest outlook on life, mixed with a little sassiness, which is exactly what I need to handle tough cystinosis situations.  This positive outlook is definitely helping me with my growth hormones, which I just started about a month ago.  Mommy and Daddy give me a shot of growth hormones every night before bed to help me grow and, potentially, increase my appetite.  Another benefit of growth hormones that researchers are looking into is the potential positive effects growth hormones can have on my muscles and most importantly in the prevention of muscle wasting which I will have to handle in the future.  As you can tell from my picture, I love Doc McStuffins, so I always sing the Doc McStuffins song about shots just "tickling" a little, and although it pinches I bounce right back and keep on keeping on.  I really am Mommy and Daddy's hero!

← My Trip to StanfordSecond Annual Nemours Cystinosis Family Conference →

Prefer to make a direct donation instead of gambling on the guys’ shad fishing skills? You can visit the CRF website to make a direct donation here: https://www.cystinosisresearch.org/family-stories/brooke-emerson/#donate