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Hope For Brooke

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help find a cure for an extremely cute kid with an extremely rare disease

Hope For Brooke

  • ABOUT BROOKE
  • EVENT 2026
  • CYSTINOSIS
  • DONATE
  • BROOKE'S BLOG

505 Fish and 1 Kayaker Caught in My Tenth Annual 2025 Fundraiser!

March 14, 2025 Ian Pullman
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What do you get when you combine four friends and 505 fish?  How about over $75,000 raised to fund research to provide life-changing treatments for children and young adults with cystinosis!  In addition to the near record catch of fish, my dad and his friends also pulled a kayaker out of the 40-some degree river water after his kayak capsized.  For the second year in a row, Ralph took the crown this year with hefty haul of 144 shad!  The near record catch, along with a matching pledge from a donor, resulted in a huge win for me and my friends with every dollar going directly to cystinosis research.  We are again thankful to everyone who was able to make a donation and bring us one step closer to a cure.

The 2024 Fundraiser was a Record Breaker! →
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Prefer to make a direct donation instead of gambling on the guys’ shad fishing skills? You can visit the CRF website to make a direct donation here: https://www.cystinosisresearch.org/family-stories/brooke-emerson/#donate