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help find a cure for an extremely cute kid with an extremely rare disease

Hope For Brooke

  • ABOUT BROOKE
  • EVENT 2025
  • CYSTINOSIS
  • DONATE
  • BROOKE'S BLOG

2018 Day of Hope

April 22, 2018 Ian Pullman
Brooke3.jpeg

This is our third year in Newport Beach, CA for the CRF Cystinosis Family Conference and Natalie’s Wish gala. It’s always so nice to see my cystinosis family and to spend time with others who know what day-to-day life is like for us! We learned a ton at the conference, and are so excited and hopeful about the progress made on the cure and eye treatments. There are a couple of really cool things on the horizon! Thanks always to Nancy, Jeff, Natalie and Alex Stack for their love, support and perseverance! We are forever indebted to the CRF!

← 2018 Cystinosis Summer VacationMy Third Fundraiser! →

Prefer to make a direct donation instead of gambling on the guys’ shad fishing skills? You can visit the CRF website to make a direct donation here: https://www.cystinosisresearch.org/family-stories/brooke-emerson/#donate