Woo hoo! I got to spend a long weekend in upstate NY with my cystinosis BFFs Charlotte and Lily this summer! Mommy and Daddy loved hanging out with their parents (and Charlotte’s baby brother, Alex) too. We spent our days at the lake fishing or in the pool playing, and our evenings in the kitchen and family room eating, snuggling on the couch watching movies, and playing with my Littlest Pet Shop toys. Each morning we ran up and down the big hill together, and made our parents chase us all over the place! It’s so nice to spend time with my friends who understand the medicine breaks, the nausea, the food pickiness and time constraints, and the water breaks! Mommy and Daddy enjoy having friends who they can talk to about anything; cystinosis-related or not. We can’t wait to plan our 2019 vacation with these two wonderful families!
2018 Cystinosis Summer Vacation
Brooke and friends