Daddy and his friends Hans, Ian, Mike and Ralph made a long trip down to North Carolina to raise funds for kids like me with cystinosis. The river was very high and muddy due to record rainfall and flooding, but they persevered and somehow managed to catch a combined 235 shad; raising over $28,000 for cystinosis research! I am so thankful to all the people who made a pledge for the fisherman and made this year’s fundraiser another huge success!