We were thrilled to head out to California again for the CRF Cystinosis Family Conference and Natalie’s Wish gala. We were so happy to visit with all our friends and other families who deal with the same challenges that I face every day with cystinosis. We were encouraged to hear about all the ongoing research especially the recent approval for the upcoming gene therapy trial. Its great to see that our fundraising efforts are going straight towards new treatments and a potential cure for cystinosis!